Tuesday, June 28, 2011

MRI Results

The MRI results came back this evening and they are great! Dr. Sacco feels very confident that he got out about 95% of the tumor. The remaining 5% (which could actually be less!) should be able to be taken care of with the chemo/radiation treatments that we will do next. We are SOOOOO thankful for this amazing news. I can't tell you how much of a weight has been lifted off my shoulders!

We have moved down to the floor now, and will stay here until further notice. We should meet with our neuro-oncologist tomorrow to confirm that we won't need anymore surgery in the near future, but we feel strongly that she will agree with Dr. Sacco. The next step is waiting for the pathology results that will most likely take until the end of the week!

At this point we are really living day-to-day. Sometimes it's hour-to-hour. We aren't looking at the big picture that all of this means, because honestly it's just too overwhelming. Right now we know that our sweet boy is doing well and is happy. And that is all we can ask for today!

My dad got James a portable dvd player that we can use in the hospital and when we go to chemo. James has never watched movies before, so I wasn't sure how he would react. Our pediatrician was here the other day and I had turned it on for James to watch Cars. I started apologizing to her because I know that TV watching is terrible for your child. She told me that throughout this journey I am going to be doing alot of things that I never thought that I would do as a parent. I need to do whatever I can to get through it, and she thought the dvds were a great idea.

Speaking of dvds, does anyone have ideas about how to entertain an 8 month old during chemo treatments?! If you have ideas, I'd love to hear them. So far I have movies. That's the only thing on my list!

And finally, dear friends, let me thank you for everything. I know I sound like a broken record, but I could not be going through this journey without the wonderful, caring, supportive friends and family in our lives. I truly feel that prayer lifts us up and carries us when our hearts are too heavy to hold. Thank you for sustaining me and breathing life into me when I wasn't sure I had breath left. There is not an hour that goes by that I don't reflect on your kind words of encouragement. You are such a blessing to me and I am so very grateful for you.


  1. Yay! Can we add another point for James on the scoreboard? :)

    Raylea's favorite movies when she was little (around 1yr) was the Kids Songs DVDs, http://www.kidsongs.com/videos

    Rotate out his toys often so he doesn't get bored of them. I'll try and think of some more ideas but I AM JUST SO HAPPY FOR THIS GOOD NEWS!!

  2. Mac loves baby einstien, did the science kid, blues clues, and baby moves! They are short guys like 25 minutes long. So happy james is doing well now.

  3. you are all-star parents (your son hadn't watched a movie until he was hospitalized - very impressive)!

    rejoicing with you about the great news today, and we'll keep praying!!!

    i also recommend baby einstein & praise baby :)

  4. Hi Kara,

    You don't know me but I ran across your blog when someone posted a link asking for prayers for James. Know that I am keeping your family in my thoughts as you all battle the nasty C word together.

    Another blog that I follow, Karing for Keegan, will get you in contact with Keegan's mom, Beth. I am sure she would have some ideas for you on entertaining babies during chemo treatments. Her blog contact info is at http://karingforkeegan.blogspot.com/p/contact-us.html

    Best wishes as your little fighter goes through this battle.

    Brooke Hailey

  5. Kara,
    I can't tell you how excited we are to hear this good news. All of you will continue to be in our prayers!

    Bobby loves Yo Gabba Gabba. I will look for some DVDs for y'all. I think it appeals to the little ones a bit more than movies.


  6. My son has a little laptop that we got at Target by Vtech when he was six months old. He LOVED it. Its very simple and lights up, talks and plays music with the push of buttons. Our son is two and a half and STILL loves that laptop.

    Although you dont know me, your family is in my prayers. Prayers that good news keeps coming in for your family and precious precious son!

  7. Kara, I found your story through a friend on fb and have followed along ever since. I have an 8 mo old baby boy as well (about a week younger than james) and cant imagine what you're going through, BUT I am soooo thrilled at the positive news!!! We serve a mighty and GREAT God!!! Caleb LOVES wonder pets, he watches them once a day, it's a 30 min show on nick jr. I'm sure you can get them on DVD. He's absolutely MESMERIZED by them! Looking forward to more good news! Praying for y'all (ps we're Baylor bears too!)

  8. I started Emma on Cheerios at his age and they are now her mid-afternoon entertainment. She'll spend 30 minutes just playing with them and trying to get them in her mouth. Though I don't know if you're allowed to eat during the actual treatment? I have heard of people eating "chemo popsicles", and it may make me sound like a bad mom but we let Emma try a popsicle at 8 months and she LOVED it! We're praying for your family and precious James. Thank you for keeping everyone updated through your blog.

  9. Baby Einstein DVD's are a HUGE hit with my 11 month old. A little slower paced than a movie...more like a digital "board book". They are educational and some of the scenes and music are soothing.

  10. Wileys: Thanks. As it turned out, James was a fan of ipad songs.

    Miranda: James was a Pixar fan. We also managed to get a lot of Disney in,

    Courtney: I don't know about all-star. I think everyone does their best.

    Brooke: Thank you. We were blessed by a lot of people asking for prayers on our behalf.

    Taylor: Thank you. I wish we'd had the chance to try those.

    Wiz: James actually had that laptop. He loved it.

    Kdub: I hope Caleb is doing well.

    Abby: James loved mum-mums- I'm sure he would've gone for cheerios.

    Andrea: Thanks. I'm convinced James loved the movie Cars, though there's nothing to prove it but my intuition.